The Fillinghams

We are fundraising for The Children’s Hospital Charity!

We are taking on Team Theo's Glow Run 2021 to raise money for Sheffield Children's! 

We are so thankful to have Sheffield Children's and for everything they do. Including for our family going there every 4-6 weeks along with the numerous phonecalls and prescriptions in-between. 

Please support our fundraising if you can, every penny makes a difference.

Thank you!

My Achievements

Created a Fundraising Page

Self Donated

Upload a Profile Picture

Shared Fundraising Page

Reached Fundraising Goal

Created a Team

Added a Gallery Image

Raised £50 or over

My Updates

Glow run completed 💛💙

Wednesday 15th Dec
Thanks again to everyone that donated to our fundraiser for a place so special to us! We really appreciate every single kind donation. It was such a lovely atmosphere and the event organisers were amazing, especially with Lyla & Jude - they got to dance on stage aswell as sound the horn to start race! Jude is seriously impressed with his Theo bear medal 🏅

Today's the day

Tuesday 14th Dec
Thank you for all the kind donations we are overwhelmed by all the support. We had yet more amazing care from the Children's yesterday. Coby's swabs are all clear but Jude has grown Haemophilus influenzae. The team as usual just at the other end of the phone for help and advice, popped a prescription in for some different antibiotics. He is happy in himself but wet cough, wheezy and sometimes short of breath. Jude has handled his bugs so so sooo much better since we have been getting care from the CF team. To say his first 2 years were really difficult is an understatement. We are so grateful we have them and as this little 6 month snapshot shows, the Sheffield Children's Hospital and particularly the CF Unit really are a huge part of our life, thank you for all the donations to our fundraiser 💛💙

One birthday wish granted ✨

Thursday 9th Dec
Back to CF Unit yesterday for the 2 week IV check for Coby. All sounds good so one birthday wish granted! Back to his usual regime and removed his line! Unfortunately Jude started again a few days ago with the shortness of breath and wheeze though, so different antibiotics and more inhaler for him. He's handling it well this time and back bouncing off the walls now, hopefully he keeps this way 🥰

OPAT saving Christmas

Wednesday 1st Dec
Coby's stats came up, chest started to sound better, he successfully had the picc line fitted and we were able to go home and have the OPAT team do his IVs. Because of the amazing care from everyone whilst an inpatient and OPAT team and how they try their best to accommodate families, we were able to accept the invitation to help the elves make some teddy's & meet Father Christmas yesterday!

Another admission for Coby

Thursday 25th Nov
We did all we could at home with the help of the CF team at the other end of the phone helping as always but unfortunately he was getting worse so had to be admitted. He's so much better already than when we came in a couple of days ago. Waiting to go to theatre now and get a picc line fitted, stats to improve then hopefully OPAT will come to do the IVs at home and we will be back with the family. As usual Sheffield Children's have been amazing and we can't thank everyone enough 💙💛

Coughs and colds never ending

Wednesday 17th Nov
Not long since they finished their last treatment regime of stronger antibiotics. But here they are back on them after feeling poorly and coughing again. Sheffield Children's Cystic Fibrosis team to the rescue again with the cough swabs, antibiotics, advice and support. So grateful 💙💛

Brave boys 💙💛

Sunday 7th Nov
As always I'm rubbish with the updates. Since the last post our brave boys were absolute troupers for their annual review... Sooo proud of them! Jude, bless him, was such a superstar for his extra parts too - being really patient for the really long ultrasound and managing to get through the traumatic blood taking (and failings 💔). Definitely helped him seeing the bears, so glad there are some in the hospital 🐻💛💙 The CF team as always being fabulous had lots of information ready for us and the boys usual nurse wasn't there on annual review but she called when she was back at work to see that everyone was ok after it 🥰 We've had some results back )all good) and the rest of the results we will be having a annual review debriefing appointment to discuss 💜

More visits to SCH

Thursday 9th Sep
Back to school and back to reality week. Monday - Jude had an appointment with hearing services for more testing of his unilateral sensorineural hearing loss. He was amazing and cooperated the best he ever has with it, managed to get both ears tested this time. Back in 6 months to see the consultant. Tuesday - both boys had their Cystic Fibrosis clinic appointment. Both chests sound clear, gained weight and Jude's back where he needs to be. Both boys oxygen lower than where they usually are and still no precision medicine but we are still hopeful 🤞🏻 Wednesday - both started with coughs, Covid tests done waiting results. I thought we might make it to the end of the week but it was inevitable with it being back to school and the clinic curse we call it as they always start after clinic. Jude had a cough swab and Coby NPA so they will let us know what's going on. One plus of them having coughs earlier than I thought is hopefully by the time their birthdays come if they need treatment the antibiotics will have kicked in abit and they'll start to feel better by then. But knowing their luck probably be Covid this time and have to isolate for both their birthdays 🤦🏼‍♀️

The happiest poorly boy

Friday 3rd Sep
Less than a week after Judes quick visit - a few days into the school holidays, Coby who seemed fine that same day required admission suddenly and was in for 11days. I'm still processing this one but can't speak highly enough of the Cystic Fibrosis Team, all the staff on Ward 3, the theatre staff and the OPAT team for everything they did and are doing.

Kicking of the summer holidays with coughs

Friday 3rd Sep
Jude had a trip to the hospital first just before the school holidays started. He was able to have a speedy recovery and coped the best he's ever coped with it thanks to the Cystic Fibrosis Unit.

When you see your favourite bear as a big sculpture 😲

Friday 3rd Sep
I'm no good at keeping up with these blog posts.... Jude was beyond excited to see 'big Theo bear' in the summer. He can't remember meeting Theo mascot as a baby he'll be so happy when the mascots able to be back out, he absolutely adores Theo bear 🐻

Coby being brave boy today 💙

Monday 5th Jul

Can't keep track 🤭

Monday 5th Jul
I'm not very good at finding time to keep going with things like this. So... Since the last blog post just over 2 weeks ago we've had more amazing help from the Children's Hospital. We've had a clinic visit the week before last seeing the consultant, nurse, counsellor, dietician and physiotherapist. Coby lost weight 10% due to being poorly the week before so got to work hard to get him back up to his weight. Also trying out some different things to get their salt intakes up. Jude had a cough swab and Coby a nasopharyngeal swab. Hopefully they will come back clear as the boys are still on treatment dose antibiotics.
Last week Jude had his speech and language therapy appointment, which he did not want to entertain at all and refused to even say the animals - which he loves! So she is coming to our house in the next few weeks, where hopefully Jude will be in the mood to show her what he's learnt. We've also needed to call the cystic fibrosis specialist nurse and get a prescription last week as Coby started with a yeast infection due to the antibiotics.
Today Coby has had another sweat test which he was amazing with and now we wait for the results and see if there is any changes since his first sweat test.

Baby Theo bear

Wednesday 16th Jun
Jude gave Coco baby Theo bear but has since taken baby Theo back for his nap 💞

Grateful for SCH again today

Wednesday 16th Jun
Phone calls the last 2 days and a quick visit to the Children's today for Coby's NPA swab and to collect his antibiotics. Hopefully he will pick up quickly like Jude has done since he had started with his last week 🤞so thankful for SCH again today 🥰

Thank you to my Sponsors

£189

Complete Stonecraft Limited

Good luck with the glow run. My wife works at the children's hospital in CF and glad I can support you.

£42

The Fillinghams

£26.25

Katie Platts

Good Luck guys 🙌❤️

£21

Kerry Tyler

Good luck! ❤️

£21

Lauren Shaw

Well done to you on the fund raising!!

£21

Kate Mantle

£21

Kerry Tyler

Have fun guys! ❤️

£21

Chaytali Jogia

£21

Sweetheart Nan & Grandad Pops

Love you all so much xxx ❤️

£21

Joanne Crookes

£21

Jess Gregory

£21

Clare Jones

£20

Kate Mantle

£13.65

Nat C

💙💙

£13

Debra & Andrew

£10.50

Rachael Lonsdale

Love you! ❤

£10.50

Hannah Stuart

Lots of love xxx

£10.50

Kathryn Millward

£10.50

Anonymous

£10.50

Karen Gray

Good luck 💙💙

£10

Kathryn Millward

£10

Anonymous

£10

Lisa Oxley

Good luck 💙💙

£10

Michele Weldon

Happy to donate to this wonderful family's fundraising. Lot's of love from The Weldons. X

£10

Gwendolen Alice Whittaker

£8

Jane Manson

Great effort and cause. Well done x

£6.30

Lu Hunt

£5.25

Emma, Steve, Jess And Alice Xxx

Go team Fillingham!!

£5.25

Liz

Good luck with the walk xx

£5.25

Katherine Gelsthorpe

£5.25

Rebecca Ainley

❤️

£5.25

Katherine Flinders-stratton

£5

Abi

Well done Fillinghams!

£5

Becky

Great fundraising effort! Well done x

£4.20

Laura Hall

£2.10

Laura Fillingham

Candy cane guess 497

£2.10

Anonymous

Well done on all your fundraising efforts. I'd like to guess - 184 candy canes in the jar

£1.50

Laura Fillingham

£1

Alexandra Hughes

Thank you for the Lion Inside!